daily-challenges-faced-by-essential-tremor-patients-and-how-to-manage-them

Daily Challenges Faced by Essential Tremor Patients and How to Manage Them

While most people think of Essential Tremor in relation to hands that shake, the impact of this condition can reach far beyond just that. The psychological effects of tremors can undermine self-belief and make the completion of everyday tasks feel like insurmountable challenges, such as taking a sip of tea, sending a text message, and yes, writing a simple note.

Remember, though the disorder itself is not usually fatal, its gradual impact can make life very difficult and emotionally draining for the affected. This is especially true for people who have to deal with tremors that are hard to ignore. This is especially true in social settings.

By understanding essential tremor and its constraints and mundane everyday challenges, we can put in place coping mechanisms that can help improve the quality of life for patients.

What Is Essential Tremor?

Essential tremor is a disorder and a brain abnormality that is characterized by involuntary, rapid, rhythmic, and oscillatory movements. It most commonly affects the hands, but can also involve the head, voice, arms, or legs.

A tremor will often appear as an action is being performed and will not be present once the affected body part is at rest.

Essential tremor can affect individuals of all ages, though it is typically more prominent in the elderly and most often has a familial background.

Common Symptoms of Essential Tremor

Symptoms of essential tremor will most often appear slowly and gradually worsen over an extended period of time.

Some of the common signs of Essential Tremors are:

  • Shaky hand movements while engaging in activity
  • Inability to write clearly
  • Hands shake while eating or drinking
  • Head shakes (not always present)
  • Voice shakes
  • Difficulty with small hand movements
  • Tremors getting worse during stressful or tiring situations

It is worth mentioning that not all patients present the same level of severity; some people tremor minimally, while others tremor to the point of disrupting life.

Essential Tremor Patients Daily Challenges

In general, some patients report three major problems:

  • Patients report the challenge of eating and drinking without creating a mess
  • Patients report the challenge of legible writing and typing
  • Patients report the challenge of dressing and personal grooming

Patients report problems with fine hand movements.

Lastly, a major problem that all the patients report is the experience of social anxiety. This is directly correlated to the patients becoming extremely self-conscious about their tremors, to the point of avoiding social and public speaking activities. It’s also worth mentioning that most patients feel self-conscious about their tremors, and this self-consciousness stimulates nervousness to the point of avoiding social and public speaking activities.

Some patients report that certain jobs that require slower and more controlled hand movements are also nerve-wracking and may lead to more severe tremors and the self-consciousness of looking “nervous, weak, and sick.”

Fatigue and Frustration

Being unable to carry out regular tasks can create frustration and emotional fatigue.

What Can Make Tremors Worse?

There are several things that can make tremors worse, such as:

  • Stress and anxiety
  • Not sleeping enough
  • Too much caffeine
  • Physical fatigue
  • Emotional fatigue
  • Some medication

Recognizing these triggers can reduce symptoms, assuming that tremors are the reason for the symptoms.

How Do You Diagnose Essential Tremors?

There is no single test to see if essential tremors are the case. Diagnosis is still quite subjective, and only the physician can interpret it.

Medical History

Doctors will generally ask multiple questions about your family history, like:

  • Do you have family members with tremors?
  • When did you notice the symptoms?
  • Do the symptoms present when you are still or moving?
  • What is your lifestyle like? How much stress is in your life?

Neurological Examinations

Neurologists will check the state of your body:

  • Coordination
  • Balance
  • Muscle strength
  • Reflexes
  • Tremor types
  • Tremor frequency

More Tests

There might also be bloodwork and MRI scans to eliminate the presence of Parkinson’s or any other diseases of the nervous system.

How to Manage Essential Tremors

Due to the nature of essential tremors and there being no clear remedy, there are ways to remedy essential tremors.

Lifestyle Modifications

Stress Reduction

Symptom control heavily relies on stress reduction and therapy. Therefore, the following have been found useful:

  • Meditation
  • Breathing Exercises
  • Yoga
  • Relaxation
  • Visualization Techniques

Improving Sleep

Sleep has a cyclical relationship with tremors. Having a stable sleep schedule, therefore, leads to more consistent and decreased symptoms.

Less Caffeine

Decreasing the intake of tea, coffee, and anything with caffeine can also reduce tremors and stimulation of the nervous system.

Practical Daily Modifications

Making small modifications can make daily tasks more manageable.

Here are some tips on using simple tools that can help make your daily tasks more manageable:

  • Holding utensils or cups that have added weight
  • Wearing clothing that has zippers instead of buttons
  • Using both hands to hold objects
  • Using your phone or computer’s voice typing feature
  • Taking breaks while doing the same task over and over

Occupational therapists can teach different ways to improve hand coordination.

There are also some medical options.

Medications

Your doctor may help you by offering something to help lessen your symptoms, to make daily speech and tasks easier to manage.

Therapy

Occupational and physical therapy may help you enhance your coordination and posture to help you become independent.

Advanced Treatments

Offered to help when nothing is working are Deep Brain Stimulation (DBS) and MR-guided Focused Ultrasound.

The Importance of Support

Having essential tremor can be a lonely condition.

There is a lot of value in having emotional support from family and friends, support groups and help from mental health professionals.

It can be overwhelming to have an essential tremor and have others think you are nervous or weak.

Being a patient does not mean weakness or nervousness. They are not in control of their tremors.

Conclusion

There is a stigma with essential tremor where people believe the patient is just nervous, and it is only seen in handshakes. This is not true.

My medications, the small lifestyle changes I’ve made, my emotional support, and overcoming the small hurdles with medical help have made it so I can have an active lifestyle.

There is a high value in early diagnosis and starting treatment. It helps lessen the severity of tremors.

People with tremors should reach out to a neurologist for more help.

Frequently Asked Questions

1. Does stress make essential tremor symptoms worse?
Definitely, many patients report that the severity of their tremors increases when they are experiencing stress or anxiety.

2. Is essential tremor life-threatening?
Not usually. It is typically not life-threatening, but more severe cases can certainly make daily life more challenging and frustrating.

3. Do only old people get essential tremors?
No. People of all ages can have essential tremor. This includes children, teenagers, and young adults.

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