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Travelling with Parkinson’s Disease or Essential Tremor: Tips for a Safe and Comfortable Journey

Travelling is an interest and experience for a lot of us. There are many reasons to travel: family trips, vacations, visiting relatives, and work travel. Having a movement disorder like Parkinson’s or essential tremors shouldn’t hold you back from going to new places. With a little preparation, you can modify your travel and continue to do it for many years.

Parkinson’s and essential tremors both have the same symptoms of having movement issues, but everyone experiences different types and levels of issues. Some individuals may only have symptoms that cause issues on long trips. Having a good understanding of your condition can ease the burden travel can have.

Essential Tremors and Parkinson’s Disease

It’s important to note that both essential tremors and Parkinson’s are in the same disorder classification of movement disorders, but they have their distinctions.

Parkinson’s is a progressively worsening condition that decreases the body’s ability to move as dopamine levels fall in the nerve cells of the brain. Symptoms can be subtle and may not worsen in the beginning but will eventually become more pronounced.

Essential tremors usually cause episodes of involuntary shaking in the hands of those affected when they are in motion and can cause even more disturbance to daily life. Though essential tremors aren’t as severe a disorder as Parkinson’s, they have even more adverse side effects on daily tasks due to the nature of the disorder.

With the right treatment, many affected individuals can continue to have an active lifestyle, even travelling.

Symptoms

Parkinson’s Disease

Symptoms include:

  • Tremors, which often start in one hand
  • Bradykinesia or slower movements
  • Stiff muscles
  • Trouble balancing and walking
  • Changes to facial expressions
  • Fatigue
  • Speech becomes softer and quieter.
  • Handwriting becomes smaller
  • Body posture shifts

Essential Tremor

Symptoms include:

  • Tremors of one or both hands when they move
  • Difficulty in writing and eating
  • Tremors when holding objects
  • Shaking of head for some
  • Tremors in voice
  • Tremors that are worse under stress, anxiety, or fatigue

A larger range of symptoms is seen in a greater number of individuals.

How are these conditions diagnosed?

Parkinson’s and essential tremors are diagnosed most often through detailed assessment by a neurologist. This assessment most often includes:

  • Collection of medical history
  • Discussion of symptoms
  • Neurological assessment
  • Evaluation of balance, coordination, and strength of muscles
  • Assessment of tremors while at rest and when they move
  • Observation of walking and posture

An MRI, specialized brain scan, or a blood test may be performed to assess other conditions.

Diagnosing these conditions accurately is very important since treatments and plans for travel can differ.

Plan before you travel

A successful trip often starts before leaving your home.

If you have the ability to do so, please speak to your neurologist before travelling, especially for long-distance or international travel. They can inform you on whether your symptoms are under control and if your treatment needs to be adjusted. You are also encouraged to do the following:

  • Pack for your trip along your normal supply of medication and an additional supply to account for possible delays.
  • Keep medications in their original containers.
  • Keep a copy of your prescription and your medical records with you when you go on an international trip.
  • Your medication should always be stored in your carry-on, not your checked bags.
  • Be aware of the healthcare facilities that are available at your destination.

Problems during travel can be avoided with proper planning.

Travelling should be done comfortably

Take Plenty of Rest Breaks

People with Parkinson’s disease experience increased fatigue and stiffness. This is exacerbated by long travel sessions.

Try to take a break to stretch your legs if travelling by car. On flights and at train stations, walk around as much as possible, considering the safety of those around you.

Stay Hydrated

Dehydration can contribute to travel fatigue and may aggravate symptoms.

To stay hydrated, drink plenty of water during your trip, especially in warmer climates.

Keep to Your Medication Schedule

To best manage your symptoms, stay on schedule with your medication.

When crossing time zones, check with your doctor to see if schedule changes are necessary.

Dress Comfortably

Supportive shoes and loose clothing not only allow you to move more comfortably, but also help reduce the likelihood of falling.

Plan on Extra Time

Worsening of tremors is often the result of increased travel-related stress.

To prevent travel-related stress, give yourself plenty of time by arriving early.

Tremors While Travelling

People with essential tremor experience increased shaking due to the symptoms listed below.

  • Stress
  • Fatigue
  • Lack of sleep
  • Caffeine
  • Skipping meals

Abiding by the symptoms listed above may lessen the frequency and severity of symptoms while travelling.

Digital boarding passes and contactless payments may help you travel less stressfully.

Travel Safety

Travelling safely is always the number one priority.

Here are some ideas you may find useful:

  • Use handrails when possible.
  • Don’t carry heavy luggage when you can avoid it.
  • Ask for help at airports and train stations when you need it.
  • Keep things you may need easy to get to.
  • Wear shoes that are hard to slip out of.
  • Don’t push yourself too hard when sightseeing.

Many transport providers have mobility assistance services, and these can be booked ahead of time.

Treatment Helps Maintain Independence

When symptoms are managed well, travel is less stressful.

Some forms of treatment may be:

  • Medication
  • Physiotherapy
  • Occupational Therapy
  • Speech Therapy
  • Regular exercise

For severe essential tremor patients, MRgFUS is a treatment option that may improve the quality of daily life by lessening the severity of tremors. This treatment is offered to only select patients and is to be thoroughly investigated by a neurologist.

Enjoy Your Trip

Having essential tremor or Parkinson’s means you have to plan ahead of time, but that does not have to stop all travel. Many people are still willing to take vacations, visit loved ones, and see all the new places travel has to offer.

Here are some ideas to help you enjoy your travels. Take some time to make a plan. Make sure you are following your prescribed treatment and also managing your energy levels. All of this can help your travels be far less stressful and more enjoyable. Travelling doesn’t have to be a stressful event where just the destination is your main focus. Enjoy travelling as part of the whole event.

FAQs

1. Is travelling safe for those diagnosed with Parkinson’s?
Yes! A lot of people diagnosed with Parkinson’s travel all of the time. Plan your trip, take your medicine, drink plenty of fluids, and give yourself ample time to arrive.

2. Can people diagnosed with essential tremor travel?
Yes. Because essential tremor is not an absolute obstacle to air travel, you should pack your medicine in a carry-on, arrive at the airport early, and request assistance if it will make your travels easier.

3. What do people diagnosed with Parkinson’s and essential tremor pack for trips?
Bring plenty of your treatment, copies of your prescriptions, medicine, appropriate clothes and shoes, and a snack. If you are in need of mobility assistance, pack those aids as well. It’s also a good idea to keep all of your important medical information on you.

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